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Ilumetri for psoriatic arthritis Fred's journey

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Ilumetri for psoriatic arthritis Fred's journey
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,228
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Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#21
Sat-06-11-2021, 12:47 PM
Just had my next dose of 200mg 4 weeks after the first so I'll give a quick update.

Side effects: Nothing to report here as everything has been fine. One good thing is that so far I haven't had a cold sore (Fred touches wood) I often used to get them or feel like I was getting one with Tremfya and it is one of the side effects with that, but I haven't had the feeling of getting on since starting Ilumetri. Maybe coincidence, but thought I would put it here for future reference. *Also the tiredness seems to have gone which I'm pleased about.

Psoriasis: As I mentioned at the start I don't have much psoriasis to talk about and my score when I started Ilumetri was 3 as a little patch had flared up on the side of my belly (see the difference below) so I think I can go down to a score of 2.

Start:
[Image: cfkKvbe.jpg]

Four weeks later:
[Image: q56eUrE.jpg]

Psoriatic arthritis: Now to the important part for me, I'm taking Ilumetri for psoriatic arthritis (it's not approved for that yet, but looks like it soon will be) and I'm pleased to say it is working. Mrs Fred said the other day she had noticed I was moving around a bit better and I have noticed I've started to do a bit more without the pain. It's not perfect but I can definitely say it's getting better so my psoriatic arthritis score can go down from 18 to 10.

I still have the ankle problem and some days are worse than others, but I think the Ilumetri is helping a little.

So far I'm pleased, it's still early days but fingers crossed now I have the loading dose done it should start kicking in better.

Next dose of 200mg in 12 weeks time.
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#22
Sat-06-11-2021, 13:06 PM
Great news Fred I'm glad it seems to be working without the side effects you had on Tremfya.
Hopefully this one will keep improving the psoriasis and will begin to ease the pain in your ankle Thumb

Good update Clap
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Posts: 67,228
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#23
Sat-06-11-2021, 13:13 PM
(Sat-06-11-2021, 13:06 PM)jiml Wrote: Great news Fred I'm glad it seems to be working without the side effects you had on Tremfya.
Hopefully this one will keep improving the psoriasis and will begin to ease the pain in your ankle  Thumb

Good update  Clap

Thank you Jim 78
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Bill Offline
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Treatment: Dimethyl fumarate
#24
Sat-06-11-2021, 13:22 PM
Good stuff Fred.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
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Psoriatic Arthritis Score: 1
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Treatment: Bimzelx / Coconut Oil
#25
Sat-06-11-2021, 13:26 PM
(Sat-06-11-2021, 13:22 PM)Bill Wrote: Good stuff Fred.

Thank you Bill 78
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

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Treatment: Stelara 90mg and G&T
#26
Sat-06-11-2021, 13:28 PM
Glad to see that it's working, keep it up.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,228
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#27
Sat-06-11-2021, 13:29 PM
(Sat-06-11-2021, 13:28 PM)D Foster Wrote: Glad to see that it's working, keep it up.

Will do Dave. 78
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Wooley Offline
I'd be unstoppable if I could just get started!

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#28
Sun-07-11-2021, 22:09 PM
Great news Fred, long may this continue  Thumb
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,228
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#29
Sun-07-11-2021, 22:11 PM
(Sun-07-11-2021, 22:09 PM)Wooley Wrote: Great news Fred, long may this continue  Thumb

Thank you Wooley 78
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KatT Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 5,775
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Joined: Sep 2019
Gender: Female
Location: Canada
Psoriasis Score: 1
Psoriatic Arthritis Score: Off the chart!
Treatment: Simponi + hydroxychloroquine + MTX
#30
Mon-08-11-2021, 22:36 PM
Excellent news, fast acting  Clap  hope it continues to improve!
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