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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Ilumetri for psoriatic arthritis Fred's journey

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Ilumetri for psoriatic arthritis Fred's journey
Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,228
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#31
Mon-08-11-2021, 22:44 PM
(Mon-08-11-2021, 22:36 PM)KatT Wrote: Excellent news, fast acting  Clap  hope it continues to improve!

Thank you KatT 78
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Forest Walker Offline
100 + Member I'd Rather Be Roller Skating

100 + Member I Just Cant Stop !
Posts: 9,548
Threads: 129
Joined: Aug 2021
Gender: Female
Location: Northern Washington State
Treatment: Humira, Moisturizers, Triamcinolonoe Acetonide
#32
Tue-09-11-2021, 16:43 PM
So happy for you to be in less pain and moving easier!  This may be the med that works for the long-haul.  18 to 10 is great improvement.  Hope it gets you from 10 to zero.
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,228
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#33
Tue-09-11-2021, 20:41 PM
(Tue-09-11-2021, 16:43 PM)Forest Walker Wrote: So happy for you to be in less pain and moving easier!  This may be the med that works for the long-haul.  18 to 10 is great improvement.  Hope it gets you from 10 to zero.

Thank you FW, time will tell though. Wink
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,228
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#34
Fri-19-11-2021, 13:51 PM
Note for reference: Had a call from the person running the trial alongside my dermatologist just to confirm I had started on the double dose followed by the 4 week double and was now moving onto the 12 week double dose, and asked how it was going.

An interesting thing she said was that Ilumetri is a slow starter compared to other Bio's, so although I'm pleased with the results so far she thinks it will get better once I get the next maintenance dose.
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Posts: 26,598
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Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#35
Fri-19-11-2021, 16:11 PM
(Fri-19-11-2021, 13:51 PM)Fred Wrote: Note for reference: Had a call from the person running the trial alongside my dermatologist just to confirm I had started on the double dose followed by the 4 week double and was now moving onto the 12 week double dose, and asked how it was going.

An interesting thing she said was that Ilumetri is a slow starter compared to other Bio's, so although I'm pleased with the results so far she thinks it will get better once I get the next maintenance dose.

That sounds promising !! Big Grin
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Forest Walker Offline
100 + Member I'd Rather Be Roller Skating

100 + Member I Just Cant Stop !
Posts: 9,548
Threads: 129
Joined: Aug 2021
Gender: Female
Location: Northern Washington State
Treatment: Humira, Moisturizers, Triamcinolonoe Acetonide
#36
Fri-19-11-2021, 17:05 PM
That's really good to hear!
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Fred Offline Author
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,228
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#37
Fri-19-11-2021, 17:26 PM
(Fri-19-11-2021, 16:11 PM)Caroline Wrote: That sounds promising !!  Big Grin

(Fri-19-11-2021, 17:05 PM)Forest Walker Wrote: That's really good to hear!

She did make it sound like it was designed that way.
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Wooley Offline
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
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Gender: Female
Location: Spain
Treatment: Nothing currently
#38
Fri-19-11-2021, 23:26 PM
Great to hear Fred, fingers crossed she is right  Thumb
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D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,293
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Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#39
Sat-20-11-2021, 00:08 AM
That's good Fred, I am keeping a close eye on your results.
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jiml Offline
100 + Member I Just Cant Stop !

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Posts: 47,972
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Joined: Oct 2013
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#40
Sat-20-11-2021, 00:38 AM
Let's hope she's right and it does get even better Thumb
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