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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Reducing Acitretin Medication - Thoughts?

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Reducing Acitretin Medication - Thoughts?
Wooley Offline
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#1
Mon-18-02-2019, 01:18 AM
Hi all

Some of you might know that I was diagnosed with pustular psoriasis on my hands and feet............................................well I'll give you a bit of a timeline.

April 2017 - hand and feet were awful - I was panic stricken pics below (be prepared to be alarmed!!):-

[Image: GkRnKi2.jpg]

[Image: Emj3VKi.jpg]

So as some of you may know I had PUVA and started on Acitretin around July 2017 and to be honest PUVA felt like it was burning my hands and feet, but I have to say but once everything calmed down I haven't had one spot on either my hands or feet and since around October 2017 my hands have been like below:-

[Image: F6cOPIw.jpg]
My feet have been totally clear too.............

I have to say I am totally at a loss - and don't think for one second that i am not grateful for these results, begs the question do i have pustular psoriasis??

I am so confused - is it is a combination of PUVA and Medication (Acitretin) or was I misdiagnosed?  We are talking about October 2017 I have been clear.

As a consequence, I have decided to reduce my medication (as I think acitretin is making me feel awful) so currently I am only taking a 10mg tablet every other day and all being well I hope to reduce it further over a long period of time. 

I was luckily enough to see one of the top consultants dealing in pustular psoriasis so I was totally guided by him but to not have a flare up (not one spot) for 16 months, I am either really really really lucky or i don't know what really......

As I said i am so pleased that I haven't had a flare up but not sure where to take this now?  I do see the Consultant Derm every three months so i will ask him when I see him in March but just really confused I guess????

Thoughts on reducing medication (have reduced this over the last 4 weeks) and i guess did I only maybe have a mild version of it OR did I even have it in the first place....

So confused (but so happy at the same time with lack of spots of course)!!!

Appreciate that most of you who post don't have pustular psoriasis but interested to know your thoughts on reducing medication......

Wooley
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Messages In This Thread
Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-18-02-2019, 01:18 AM
RE: Reducing Acitretin Medication - Thoughts? - by Caroline - Mon-18-02-2019, 09:31 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-18-02-2019, 17:41 PM
RE: Reducing Acitretin Medication - Thoughts? - by jiml - Mon-18-02-2019, 09:33 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-18-02-2019, 17:52 PM
RE: Reducing Acitretin Medication - Thoughts? - by D Foster - Mon-18-02-2019, 12:39 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-18-02-2019, 17:54 PM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Mon-18-02-2019, 13:32 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-18-02-2019, 17:59 PM
RE: Reducing Acitretin Medication - Thoughts? - by Grizzly Bear - Mon-18-02-2019, 16:12 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-18-02-2019, 18:06 PM
RE: Reducing Acitretin Medication - Thoughts? - by Grizzly Bear - Mon-18-02-2019, 22:36 PM
RE: Reducing Acitretin Medication - Thoughts? - by Kat - Mon-18-02-2019, 23:01 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-18-02-2019, 23:19 PM
RE: Reducing Acitretin Medication - Thoughts? - by Kat - Tue-19-02-2019, 22:13 PM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Tue-19-02-2019, 22:18 PM
RE: Reducing Acitretin Medication - Thoughts? - by Kat - Wed-20-02-2019, 18:41 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Wed-20-02-2019, 09:43 AM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Wed-20-02-2019, 13:46 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Thu-21-02-2019, 09:09 AM
RE: Reducing Acitretin Medication - Thoughts? - by Grizzly Bear - Tue-19-02-2019, 19:56 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Wed-20-02-2019, 09:37 AM
RE: Reducing Acitretin Medication - Thoughts? - by Bill - Thu-21-02-2019, 12:41 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Fri-22-02-2019, 08:51 AM
RE: Reducing Acitretin Medication - Thoughts? - by JohnB - Thu-21-02-2019, 21:24 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Fri-22-02-2019, 09:06 AM
RE: Reducing Acitretin Medication - Thoughts? - by JohnB - Sat-23-02-2019, 09:31 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sat-23-02-2019, 11:31 AM
RE: Reducing Acitretin Medication - Thoughts? - by JohnB - Sat-23-02-2019, 12:39 PM
RE: Reducing Acitretin Medication - Thoughts? - by D Foster - Sat-23-02-2019, 14:25 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sat-31-08-2019, 12:42 PM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Sat-31-08-2019, 12:56 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sun-01-09-2019, 11:29 AM
RE: Reducing Acitretin Medication - Thoughts? - by jiml - Sat-31-08-2019, 13:54 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sun-01-09-2019, 11:30 AM
RE: Reducing Acitretin Medication - Thoughts? - by Kat - Sun-01-09-2019, 01:06 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sun-01-09-2019, 11:32 AM
RE: Reducing Acitretin Medication - Thoughts? - by JohnB - Sun-01-09-2019, 18:16 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sun-01-09-2019, 22:24 PM
RE: Reducing Acitretin Medication - Thoughts? - by jiml - Sun-01-09-2019, 23:27 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Tue-10-09-2019, 11:00 AM
RE: Reducing Acitretin Medication - Thoughts? - by jiml - Tue-10-09-2019, 11:36 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Fri-11-10-2019, 07:56 AM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Fri-11-10-2019, 18:51 PM
RE: Reducing Acitretin Medication - Thoughts? - by jiml - Fri-11-10-2019, 20:04 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sat-12-10-2019, 10:12 AM
RE: Reducing Acitretin Medication - Thoughts? - by D Foster - Sat-12-10-2019, 10:44 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sat-12-10-2019, 10:58 AM
RE: Reducing Acitretin Medication - Thoughts? - by JohnB - Sat-12-10-2019, 19:35 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sun-13-10-2019, 11:16 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Wed-25-03-2020, 23:52 PM
RE: Reducing Acitretin Medication - Thoughts? - by jiml - Thu-26-03-2020, 03:21 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Thu-26-03-2020, 10:48 AM
RE: Reducing Acitretin Medication - Thoughts? - by D Foster - Thu-26-03-2020, 08:08 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Thu-26-03-2020, 10:48 AM
RE: Reducing Acitretin Medication - Thoughts? - by Caroline - Thu-26-03-2020, 08:42 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Thu-26-03-2020, 10:50 AM
RE: Reducing Acitretin Medication - Thoughts? - by JohnB - Thu-26-03-2020, 08:44 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Thu-26-03-2020, 10:51 AM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Thu-26-03-2020, 12:27 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Thu-26-03-2020, 15:26 PM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Thu-26-03-2020, 15:44 PM
RE: Reducing Acitretin Medication - Thoughts? - by Raxyl - Thu-26-03-2020, 21:24 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Thu-26-03-2020, 23:52 PM
RE: Reducing Acitretin Medication - Thoughts? - by mataribot - Fri-27-03-2020, 01:24 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Sat-28-03-2020, 23:49 PM
RE: Reducing Acitretin Medication - Thoughts? - by Caroline - Sun-29-03-2020, 07:44 AM
RE: Reducing Acitretin Medication - Thoughts? - by mataribot - Sun-29-03-2020, 07:18 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-17-08-2020, 20:40 PM
RE: Reducing Acitretin Medication - Thoughts? - by jiml - Mon-17-08-2020, 21:30 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-17-08-2020, 22:58 PM
RE: Reducing Acitretin Medication - Thoughts? - by jiml - Mon-17-08-2020, 23:02 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Mon-17-08-2020, 23:05 PM
RE: Reducing Acitretin Medication - Thoughts? - by Caroline - Tue-18-08-2020, 18:54 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Wed-19-08-2020, 08:36 AM
RE: Reducing Acitretin Medication - Thoughts? - by D Foster - Tue-18-08-2020, 07:28 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Wed-19-08-2020, 08:30 AM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Tue-18-08-2020, 09:26 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Wed-19-08-2020, 08:33 AM
RE: Reducing Acitretin Medication - Thoughts? - by Fred - Wed-19-08-2020, 10:57 AM
RE: Reducing Acitretin Medication - Thoughts? - by Bill - Tue-18-08-2020, 11:02 AM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Wed-19-08-2020, 08:34 AM
RE: Reducing Acitretin Medication - Thoughts? - by KatT - Tue-18-08-2020, 22:39 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Wed-19-08-2020, 08:38 AM
RE: Reducing Acitretin Medication - Thoughts? - by JohnB - Wed-26-08-2020, 21:47 PM
RE: Reducing Acitretin Medication - Thoughts? - by Wooley - Thu-27-08-2020, 08:45 AM
RE: Reducing Acitretin Medication - Thoughts? - by D Foster - Thu-27-08-2020, 14:03 PM

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