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biologics or meds

Poll: what is best to help with psoriosis
This poll is closed.
meds
9.09%
1 9.09%
biologics
90.91%
10 90.91%
Total 11 vote(s) 100%
* You voted for this item. [Show Results]

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biologics or meds
slm Offline
Member


Posts: 30
Threads: 2
Joined: May 2014
Gender: Female
Location: Australia
Psoriasis Score: 32
Treatment: creams
#61
Mon-15-12-2014, 12:56 PM
Hi Glenda. How are you going? I am hopeful you are on the improve. I have been out of action as my mother is now palliative. I am having two weeks respite with her being well looked after in a hospice. My psoriasis is coming out all over my body. I could cry and do! The Simponi does help my PsA which is wonderful. Stress or carrying on in stressful situations causes havoc on my body. Bless you. SLM
glenda grant Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 2,891
Threads: 8
Joined: Aug 2014
Gender: Female
Location: New Salem, Pennsylvania
Treatment: biologics
#62
Tue-16-12-2014, 07:09 AM
(Mon-15-12-2014, 12:56 PM)slm Wrote: Hi Glenda. How are you going? I am hopeful you are on the improve. I have been out of action as my mother is now palliative. I am having two weeks respite with her being well looked after in a hospice. My psoriasis is coming out all over my body. I could cry and do! The Simponi does help my PsA which is wonderful. Stress or carrying on in stressful situations causes havoc on my body. Bless you. SLM

hi slm.I am doing somewhat better with the PSA but the psoriasis not too good yet.I heard it may take up to 4 months to see improvement.I feel so bad for you about your mom.Life is not easy eh?I will pray for you and your Mom.I lost my Mom 4 years ago and miss her so much.Take care my friend.Angel
Quest4Cure Offline
As long as there is breath there is life. Life is a gift!

100 + Member I Just Cant Stop !
Posts: 639
Threads: 19
Joined: Aug 2014
Gender: Male
Location: US
Psoriasis Score: 13
Treatment: light treatments and a variety of many others.
#63
Tue-16-12-2014, 07:20 AM
Hello Glenda,

I am in the same spot waiting for my insurance company to approve a bio drug.

I have psoriasis and PSA. It's best to keep trying different drugs. Most insurance companies have a system to approving bio drugs for P and PSA.

Some prefer that u start with one bio first if that doesn't help or stops helping then u move on to the second bio on their list. Bio drugs are thousands of dollars per vile. Infusions and injections also cost depending on the mils used per injection, infusion or vile.

In the mean time maybe a few of my remedies can help you feel a little more comfortable while waiting for approval and to have the bio drug u start with sorted out. I have had psoriasis since a child and occlusion with coal tar or steroids used for occlusion has helped me for many years.

If u can get a RX for a topical steroid use lightly and protect UR fingers during application. This is not for the scalp for other areas of the skin. Alternate using steroids with coal tar using inclusion. Coal tar is available OTC. Using cling wrap at night over the P areas only.

Sealing in the meds in gets thru the many derm layers which cause of Psoriasis. This stops the little tiny capillary blood vessels that feed the P. And the steroids shut them off. Basically the same idea as bios except they go thru different vascular systems to shut down the blood vessels that feed the P. Only use

Also coconut oil at night is a good alternate to use. 3 nights steroids for psoriasis inclusion pure glycerin soap to wash, then moisturize after each hand washing or shower. Then for 4 nights use coconut oil or Vaseline or my fav mentholated vapo rub. after a week u will see a great deal of improvement. Less itching and scale build up.

For scalp olive oil, coconut oil, use a heavy oil rub on scalp and cover with shower cap over night.This will loosen the thick layers of P. Build up, any heavy oil will do.. Coal tar shampoos OTC For scalp P. Like TGEL have helped so many people. Wash hair in morning with TGEL shampoo for psoriasis of the scalp. The scales will be softened by the oil and fall off easily. Or ask UR derm for a psoriasis RX shampoo. Usually coal tar has helped many for generations.

Apple cider vinegar, mixed with Non Alcohol witch hazel and liquid glycerin, mixed in equal amounts in a spray bottle will help UR skin. Rub in during the day to stop itch and P build up.

Try to learn UR triggers for p. Injury to skin can start a flair for example. Keep PSA joints keep warm and take anti inflammatories OTC for pain. Take rest breaks several times during the day for joints. Never take hot baths or showers this will make the P worse. Use warm water then pat skin dry gently.

I have PSA and waiting for approval for a bio drug. It is a long wait with some companies.
In the mean time the old stand by suggestions above will help u in no time.

Is UR psoriasis seasonal? Mine on hands and feet are. Plaque I can control thru light therapy. Have u tried light thearpy for psoriasis. Or the new laser treatment for psoriasis is a great help. I also take vitD-3 and fish oil helps too! Stay away from sugars in anything it will cut down on the swelling in PSA.

Good luck to u and many blessing sent UR way.
glenda grant Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 2,891
Threads: 8
Joined: Aug 2014
Gender: Female
Location: New Salem, Pennsylvania
Treatment: biologics
#64
Tue-16-12-2014, 20:16 PM
(Tue-16-12-2014, 07:20 AM)Quest4Cure Wrote: Hello Glenda,

I am in the same spot waiting for my insurance company to approve a bio drug.

I have psoriasis and PSA. It's best to keep trying different drugs. Most insurance companies have a system to approving bio drugs for P and PSA.

Some prefer that u start with one bio first if that doesn't help or stops helping then u move on to the second bio on their list. Bio drugs are thousands of dollars per vile. Infusions and injections also cost depending on the mils used per injection, infusion or vile.

In the mean time maybe a few of my remedies can help you feel a little more comfortable while waiting for approval and to have the bio drug u start with sorted out. I have had psoriasis since a child and occlusion with coal tar or steroids used for occlusion has helped me for many years.

If u can get a RX for a topical steroid use lightly and protect UR fingers during application. This is not for the scalp for other areas of the skin. Alternate using steroids with coal tar using inclusion. Coal tar is available OTC. Using cling wrap at night over the P areas only.

Sealing in the meds in gets thru the many derm layers which cause of Psoriasis. This stops the little tiny capillary blood vessels that feed the P. And the steroids shut them off. Basically the same idea as bios except they go thru different vascular systems to shut down the blood vessels that feed the P. Only use

Also coconut oil at night is a good alternate to use. 3 nights steroids for psoriasis inclusion pure glycerin soap to wash, then moisturize after each hand washing or shower. Then for 4 nights use coconut oil or Vaseline or my fav mentholated vapo rub. after a week u will see a great deal of improvement. Less itching and scale build up.

For scalp olive oil, coconut oil, use a heavy oil rub on scalp and cover with shower cap over night.This will loosen the thick layers of P. Build up, any heavy oil will do.. Coal tar shampoos OTC For scalp P. Like TGEL have helped so many people. Wash hair in morning with TGEL shampoo for psoriasis of the scalp. The scales will be softened by the oil and fall off easily. Or ask UR derm for a psoriasis RX shampoo. Usually coal tar has helped many for generations.

Apple cider vinegar, mixed with Non Alcohol witch hazel and liquid glycerin, mixed in equal amounts in a spray bottle will help UR skin.  Rub in during the day to stop itch and P build up.

Try to learn UR triggers for p. Injury to skin can start a flair for example. Keep PSA joints keep warm and take anti inflammatories OTC for pain. Take rest breaks several times during the day for joints. Never take hot baths or showers this will make the P worse. Use warm water then pat skin dry gently.

I have PSA and waiting for approval for a bio drug. It is a long wait with some companies.
In the mean time the old stand by suggestions above will help u in no time.

Is UR psoriasis seasonal? Mine on hands and feet are. Plaque I can control thru light therapy. Have u tried light thearpy for psoriasis. Or the new laser treatment for psoriasis is a great help. I also take vitD-3 and fish oil helps too! Stay away from sugars in anything it will cut down on the swelling in PSA.

Good luck to u and many blessing sent UR way.
Thank you so much for all the valuable information.I have tried all kinds of meds thru my rhemmy in the past 9yrs. and most of the meds didn't work for one reason or another.I was on lyrica and gained alot of weight.Was on methotrexate and etc.My 1st biologic was Remicade and had sode effects from it.So now am on Enbrel weekly shots which is very expensive $750 a shot.My insurance is paying for it now but come Jan i start all over with my deductibles and co-pays which is $4900 and after i pay that out of pocket the ins.co pays the full amount .But it's hard to pay out all that money plus $235 a month for blue cross blue shield,Oh well pay it and stop complaining ha
glenda grant Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 2,891
Threads: 8
Joined: Aug 2014
Gender: Female
Location: New Salem, Pennsylvania
Treatment: biologics
#65
Tue-16-12-2014, 20:16 PM
(Tue-16-12-2014, 07:20 AM)Quest4Cure Wrote: Hello Glenda,

I am in the same spot waiting for my insurance company to approve a bio drug.

I have psoriasis and PSA. It's best to keep trying different drugs. Most insurance companies have a system to approving bio drugs for P and PSA.

Some prefer that u start with one bio first if that doesn't help or stops helping then u move on to the second bio on their list. Bio drugs are thousands of dollars per vile. Infusions and injections also cost depending on the mils used per injection, infusion or vile.

In the mean time maybe a few of my remedies can help you feel a little more comfortable while waiting for approval and to have the bio drug u start with sorted out. I have had psoriasis since a child and occlusion with coal tar or steroids used for occlusion has helped me for many years.

If u can get a RX for a topical steroid use lightly and protect UR fingers during application. This is not for the scalp for other areas of the skin. Alternate using steroids with coal tar using inclusion. Coal tar is available OTC. Using cling wrap at night over the P areas only.

Sealing in the meds in gets thru the many derm layers which cause of Psoriasis. This stops the little tiny capillary blood vessels that feed the P. And the steroids shut them off. Basically the same idea as bios except they go thru different vascular systems to shut down the blood vessels that feed the P. Only use

Also coconut oil at night is a good alternate to use. 3 nights steroids for psoriasis inclusion pure glycerin soap to wash, then moisturize after each hand washing or shower. Then for 4 nights use coconut oil or Vaseline or my fav mentholated vapo rub. after a week u will see a great deal of improvement. Less itching and scale build up.

For scalp olive oil, coconut oil, use a heavy oil rub on scalp and cover with shower cap over night.This will loosen the thick layers of P. Build up, any heavy oil will do.. Coal tar shampoos OTC For scalp P. Like TGEL have helped so many people. Wash hair in morning with TGEL shampoo for psoriasis of the scalp. The scales will be softened by the oil and fall off easily. Or ask UR derm for a psoriasis RX shampoo. Usually coal tar has helped many for generations.

Apple cider vinegar, mixed with Non Alcohol witch hazel and liquid glycerin, mixed in equal amounts in a spray bottle will help UR skin.  Rub in during the day to stop itch and P build up.

Try to learn UR triggers for p. Injury to skin can start a flair for example. Keep PSA joints keep warm and take anti inflammatories OTC for pain. Take rest breaks several times during the day for joints. Never take hot baths or showers this will make the P worse. Use warm water then pat skin dry gently.

I have PSA and waiting for approval for a bio drug. It is a long wait with some companies.
In the mean time the old stand by suggestions above will help u in no time.

Is UR psoriasis seasonal? Mine on hands and feet are. Plaque I can control thru light therapy. Have u tried light thearpy for psoriasis. Or the new laser treatment for psoriasis is a great help. I also take vitD-3 and fish oil helps too! Stay away from sugars in anything it will cut down on the swelling in PSA.

Good luck to u and many blessing sent UR way.
Thank you so much for all the valuable information.I have tried all kinds of meds thru my rhemmy in the past 9yrs. and most of the meds didn't work for one reason or another.I was on lyrica and gained alot of weight.Was on methotrexate and etc.My 1st biologic was Remicade and had sode effects from it.So now am on Enbrel weekly shots which is very expensive $750 a shot.My insurance is paying for it now but come Jan i start all over with my deductibles and co-pays which is $4900 and after i pay that out of pocket the ins.co pays the full amount .But it's hard to pay out all that money plus $235 a month for blue cross blue shield,Oh well pay it and stop complaining ha
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#66
Tue-16-12-2014, 20:27 PM
Oh Glenda I so glad I don't live in America. It seems that if you are ill you are constantly kept poor by the system it's either that or suffer the disease $ 4900 that's $400 a month + $235 insurance. That's a lot to have to pay when you have a chronic illness....
I just hope it works for you  Confused and you can afford the payments
glenda grant Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 2,891
Threads: 8
Joined: Aug 2014
Gender: Female
Location: New Salem, Pennsylvania
Treatment: biologics
#67
Sat-20-12-2014, 03:45 AM
It seems the Enbrel is helping my PSA my joints don't seem to hurt as bad.But the psoriasis is still with me.Last night i got up and took a Benadryl for my itching.I guess it will take time to see if my skin clears.I need to go to the tanning bed.I only stay in the bed for 7 minutes,as I am not wanting a tan.I just want this plaque to dry up.My back and scalp is the worst.My back feels like alligator skin.They say they call the PSA and Psoriasis double whammy.I really feel bad for young people who get this disease.I get another shot on Sat.I am getting quite good at giving myself a shot.Was a little nervous at first not anymore.I'll keep everyone informed of my improvements.Just hope the skin clears soon. Clap
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#68
Sat-20-12-2014, 03:53 AM
(Sat-20-12-2014, 03:45 AM)glenda grant Wrote: It seems the Enbrel is helping my PSA my joints don't seem to hurt as bad.But the psoriasis is still with me.Last night i got up and took a Benadryl for my itching.I guess it will take time to see if my skin clears.I need to go to the tanning bed.I only stay in the bed for 7 minutes,as I am not wanting a tan.I just want this plaque to dry up.My back and scalp is the worst.My back feels like alligator skin.They say they call the PSA and Psoriasis double whammy.I really feel bad for young people who get this disease.I get another shot on Sat.I am getting quite good at giving myself a shot.Was a little nervous at first not anymore.I'll keep everyone informed of my improvements.Just hope the skin clears soon. Clap

Good news Glenda your joints are feeling better with the enbrell as you say let's hope the skin will respond positively soon let's hope he next shot will be the one that starts shifting those scales xx
glenda grant Offline Author
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 2,891
Threads: 8
Joined: Aug 2014
Gender: Female
Location: New Salem, Pennsylvania
Treatment: biologics
#69
Sat-20-12-2014, 04:02 AM
(Tue-16-12-2014, 20:27 PM)jiml Wrote: Oh Glenda I so glad I don't live in America. It seems that if you are ill you are constantly kept poor by the system it's either that or suffer the disease $ 4900 that's $400 a month + $235 insurance. That's a lot to have to pay when you have a chronic illness....
I just hope it works for you  Confused and you can afford the payments

Jim crazy about the costs of insurance,I was paying $700 a month plus the $4900 until our President started what is called affordable health-care.I do get some help from the government.Once i get the $4900 out of the way i am covered 100%.But it sure takes alot of my Soc.Sec. Disability check.I am just grateful I get my $906 a month.As i said thank goodness for my husband's good income cause I don't have alot left after I pay for my coverage.When I get 65 in 2016 Feb. I'll get what is called Medicare for $110 a month which they will take out of my $906 and I'll be covered at 80% then i'll need an extra policy to pay the 20% they don't cover.Most people don't want to get older,I can't wait so I get the benefits.Ha My husband has 100% coverage from our VA system.He did serve our country and they pay for meds hosp and anything he needs.We are grateful for the Veterans Administration. Take care my friend
mataribot Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,340
Threads: 38
Joined: Jun 2013
Gender: Male
Location: USA
Treatment: >_<
#70
Sat-20-12-2014, 04:43 AM
It's not all that bad as long as you work for a decent company that provides insurance.  For my family of four, I pay 320 USD a month. My pharmaceutical card has a max out of pocket of $225 USD with a 2k USD deductible. However, one shot of Stelara is like 3k USD. Sounds bad, but the co pay assistance card pays for all of it, I pay zero.  It's really an issue to be honest.
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