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Psoriasis Club › HealthHealth Boards › Introductions v
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HI All

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HI All
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#21
Mon-28-12-2015, 12:11 PM
Good advice Bill, Thumb
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#22
Mon-28-12-2015, 12:33 PM
(Mon-28-12-2015, 12:11 PM)jiml Wrote: Good advice Bill,  Thumb

Absolutely top advice. Indeed the flushing is a signal of the activity of the DMF. Big Grin
bazza1965 Offline Author
Member


Posts: 36
Threads: 4
Joined: Dec 2015
Gender: Male
Location: dorset
Psoriasis Score: 26
Treatment: fumaderm
#23
Mon-28-12-2015, 20:17 PM
Thanks for the really good advice I am taking all of it in. 

This start of second week about to take second tab of first day.. Lol
bazza1965 Offline Author
Member


Posts: 36
Threads: 4
Joined: Dec 2015
Gender: Male
Location: dorset
Psoriasis Score: 26
Treatment: fumaderm
#24
Wed-15-02-2017, 11:58 AM
(Mon-28-12-2015, 20:17 PM)bazza1965 Wrote: Thanks for the really good advice I am taking all of it in. 

This start of second week about to take second tab of first day.. Lol

Hi All 

Its been a while since I have been here but all is pretty good. I had to come off the fume for a while until bloods got right back before October 2016 I was on 6 a day tummy over it still, but within 6 weeks I was allowed to stay on one a day and P is pretty good at the moment.

Another appointment next month so still hoping that its going to be ok.

99% clear at the moment.

Cheers 

Baz
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#25
Wed-15-02-2017, 12:12 PM
Good for you, Baz. So you are on 120 mg a day? Another member was taking 120 mg a day as a maintenance dose. He is now taking 120 mg every other day, so I hope that you go the same way.

Cheers,

Bill
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#26
Wed-15-02-2017, 12:13 PM
(Wed-15-02-2017, 11:58 AM)bazza1965 Wrote:
(Mon-28-12-2015, 20:17 PM)bazza1965 Wrote: Thanks for the really good advice I am taking all of it in. 

This start of second week about to take second tab of first day.. Lol

Hi All 

Its been a while since I have been here but all is pretty good. I had to come off the fume for a while until bloods got right back before October 2016 I was on 6 a day tummy over it still, but within 6 weeks I was allowed to stay on one a day and P is pretty good at the moment.

Another appointment next month so still hoping that its going to be ok.

99% clear at the moment.

Cheers 

Baz

Hi Baz good to see you back, glad the Fumaderm works for you, it's a shame you had to stop, but it is important to get the blood levels right, and to be honest when ever I have pushed up to six a day, my lymphocyte count drops too low, but for me and most others reducing the dose allows the blood levels to recover,
However you are back on at one tablet a day and it's keeping the Psoriasis controlled Thumb

Are you having regular blood checks? If so ask them for the values as this will let you know how your body is dealing with the tablets, ask what your lymphocyte count is as I suspect that is what must have dropped for you( normal is between 1 and 3 ) mine is currently 1.22 and I record mine here after each blood test so I can see myself if the trend is up or down.

Thanks for the update I look forward to reading of your progress
Jim
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#27
Wed-15-02-2017, 12:19 PM
(Wed-15-02-2017, 12:12 PM)Bill Wrote: Good for you, Baz. So you are on 120 mg a day? Another member was taking 120 mg a day as a maintenance dose. He is now taking 120 mg every other day, so I hope that you go the same way.

Cheers,

Bill

Yes Bill you are right and William Mateychuck is actually on one every three days RE: Fumaderm continued success
Bill Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 1,624
Threads: 6
Joined: Dec 2012
Gender: Male
Location: Queensland
Treatment: Dimethyl fumarate
#28
Wed-15-02-2017, 12:34 PM
Wow. Even better than I remember, Jim. Thumb
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#29
Wed-15-02-2017, 13:48 PM
(Wed-15-02-2017, 11:58 AM)bazza1965 Wrote: 99% clear at the moment.

Good to hear Baz and long may it continue.

You may want to update your Psoriasis Score in your profile. Wink
KyPrincess Offline
I'm a little flakey

100 + Member I Just Cant Stop !
Posts: 408
Threads: 9
Joined: Jan 2012
Gender: Female
Location: Danville, Kentucky
Treatment: Triamcinolone Acetonide Cream, Methotrexate
#30
Tue-28-02-2017, 17:07 PM
Hello Baz. Welcome to Psoriasis Club.
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