Hi everyone

[jiml]

My doctor is the same. I can't just phone dermatologist I have to be referred again a think. I have asked for tablets or injection but was fobbed off. I think it's because I am not covered but the areas I have it are really thick and go into large hacks. And I really appreciate your advice. 

Thank you kindly

You are welcome to the advice, don't ever feel alone you can always come and chat on here, we all get down at times with this awful disease and having a place like this to come to, I find a great help

if you think you won't get anywhere with your doctor, then go to A&E you are entitled to proper care and I don't care what anyone says giving you a tub of salycilic acid and tar is not good practice....

Get by ourself some good quality coconut oil tomorrow and chuck that other crap in the bin
You say you are not covered ! Just how much do you have?
Jim

[Goodstuff1]

I really appreciate that. I have never tried coconut oil. I have really bad hacks on my hands which are very deep. Same with my elbows and forearms. A little bit on my eye lid and some on my knees. It my elbows and hands that are really sore. My elbows I can hide but my hands get me really down because I can't constantly wear gloves. I have lost a job because of it. I have tried everything. its as if the skin is appearing before the acid even gets a chance to remove the old stuff. I am really embarrassed with my hands. I can't imagine what someone covered must feel like. And people under estimate just how sore it can be x

[jiml]

I really appreciate that. I have never tried coconut oil. I have really bad hacks on my hands which are very deep. Same with my elbows and forearms. A little bit on my eye lid and some on my knees. It my elbows and hands that are really sore. My elbows I can hide but my hands get me really down because I can't constantly wear gloves. I have lost a job because of it. I have tried everything. its as if the skin is appearing before the acid even gets a chance to remove the old stuff. I am really embarrassed with my hands. I can't imagine what someone covered must feel like. And people under estimate just how sore it can be x

Nobody here will underestimate the pain and embarrassment of having to try to hide psoriasis, and you can read countless members here who have had the same experience

It's as much a mental problem as it is physical and the more you stress about it the worse it gets and spirals down, well now you are among friends, who will hopefully come up with some other ideas when they get up tomorrow

I can tell you I spent years trying to hide the thick plaques and always longed for summer so I could get some natural sunshine and get myself fairly clear.
Then 4 years ago I was lucky enough to be offered Fumaderm tablets and they have transformed my life, I can now go swimming all through the year, I can sit in people's houses without leaving a trail of skin behind me

So I know it's no consolation to you at the moment, but be assured that there is a treatment that will work for you ....

You may have to make a nuisance of yourself at the doctors or the hospital ... But you should push and push hard for something that works

As I said before we will offer you advice ...as much as you can absorb, and then you can decide what's best for you

have a slice of our special cake

[Caroline]

Hi Goodstuff,

Welcome to psoriasisclub.

I'm up but don't have a direct solution for you. For that this disease is too complex and indeed as Jim says, we are all different.
You have spoken to Jim extensively already and i think he is pointing in the right direction. You need to be at the dermatologist and speak with him/her on the possibilities there are and which ones are within your range.

What I have found out through this forum already is that in the end the creams and UV treatments will not help. If the psoriasis pushes through you cannot continue with that but you have to go to other treatments that are luckily available.

Jim told you about coconut oil (that is Fred's terrain), and things like MTX, Acetretin, Fumaderm. Those are good ways to go. (Personally I am an MTX hater). There are many people on this forum who are using that satisfyingly.
So ask around and try to get an appointment with a dermatologist. You have a disease and you are entitled to that appointment.
Then go to the dermatologist loaded with information you gather and ask over here.

Have a good time, we will always be here to answer your questions, even while we are spread around over the world.
Caroline

[Turnedlight]

Hi Goodstuff, I really feel for you, when you've dutifully applied something they gave you and it burns it can be so horrible. I would have thought you wouldn't apply salicylic acid to broken skin.. But then, I've never been given it.

I'd suggest you make an appointment with the doc (or another doctor at your practice) if you are no longer under derm, and take all your creams, tubes, ointments etc in in a plastic bag and dump them on the desk as a visual display (that's what I did anyway, in my desperation) and show them the emotions too, we think when we go into the doctors we should take a breath and act like an adult but the problem is they really don't have any idea how much psoriasis hurts - I've even been told it doesn't/ shouldn't hurt by a doc who obviously read that somewhere.

Or the A and E, that's also a good idea and if you think you might be wasting their time, think how much of your life they've been wasting by withholding proper treatment. Grr!

[Goodstuff1]

Hi everyone thanks very much for all your replies. And you have hit the nail on the head. I feel like I am pestering my doctor. I live in a small village so the doctors know is quite well. I am going to call dermatology and ask for an appointment and I have taken notes of stuff that some of u have tried that I have never even heard of so I can ask about these treatments. It's always cold here and certainly does not help. We have snow today. So day in house for me because the cold hurts so bad. I really appreciate all your help and advice as no one else in my family has it so they don't understand. It's nice to speak to people who are also having the same problems xx

[Grizzly Bear]

   Goodstuff1    

Have no fear, the mad bear is here

Welcome to the loony bin for Psoriasis sufferers, i'm the insane one on here

Seriously Goodstuff, i think firstly, get to a dermatoligist, secondly, i use salicylic acid but only on my heels. I have used it before on my P when it was out of control (long story) but it only reduces the plaques, not the inflammed redness !!!
Try not to use it all the time as it can kill off the good skin.

For the moment, see if you can grab a tub of Biona virgin coconut oil raw & cover your P in that, it's good. You can get it from Amazon or fleabay. I think, though i'm not 100% sure, you can grab it from Holland & Barrett ?

I use it & i have some cotton gloves (soaked in coconut oil now) & i put the coconut oil on my hands & finger tips then put the gloves on & it helps take the sting out the soreness etc.

Pop in more & let us all know how you are getting along & don't worry, we are all in the same boat so we understand about P (probably more than those that examine us !!!! ) plus you can ask away & 99.9% of the time, you will get an answer

Here lassie, have this ..............

[jiml]

Hi everyone thanks very much for all your replies. And you have hit the nail on the head. I feel like I am pestering my doctor. I live in a small village so the doctors know is quite well. I am going to call dermatology and ask for an appointment and I have taken notes of stuff that some of u have tried that I have never even heard of so I can ask about these treatments. It's always cold here and certainly does not help. We have snow today. So day in house for me because the cold hurts so bad. I really appreciate all your help and advice as no one else in my family has it so they don't understand. It's nice to speak to people who are also having the same problems xx

Great news you are going to phone, turnedlights idea of packing the stuff into a bag and presenting it to the doctor was a great idea, don't forget to weep. Don't put on a brave face and tell them what you would like to try.
Good luck, and keep coming back to see us  

[Fred]

Yep I'm with the others first off get yourself some good quality Coconut Oil you can read more about that here: Coconut Oil

When you said "have asked for tablets or injection but was fobbed off" You won't get the injections they are used for serious cases or a last resort. And as for the tablets your GP can not prescribe them to you, so you do have to see a dermatologist. Your GP (who sounds rubbish to me) will do nothing more. I understand you not wanting to pester your GP, but it is their job to look after you, and psoriasis is a long term autoimmune problem that has many underlying problems.

You have lost a job and it is effecting your quality of life so demand that your GP send you to a dermatologist. Trust me, once you find a dermatologist that you can get on with they are worth their weight in gold and can help you get your life back.

Unfortunately our families even though they try can't understand how we feel, but it's very important that they understand psoriasis is not just a skin problem. There are lot of other problems related to psoriasis, depression and low self-esteem being a couple of them and that is where your family and friends can help.

But if all else fails we are here to lean on and we do understand, so never be alone.

[Goodstuff1]

Hi yeh it was the dermatologist I asked about tablets. She said they were a last option. I have contacted my gp to be referred back to dermatologist but it's at least a 16 week waiting list to see them. I have to go to my gp tomorrow morning as he can't refer me without seeing me even though he knows what it's like. Going to get some coconut oil and try that. So here's hoping it makes a difference.

Thanks again. Xx