Hello

[TB32]

First post here...
Bee a sufferer of psoriasis for 40+years and are currently having a breakout after coming off fumaderm about 20 months ago.

I'm a bit annoyed with the NHS if im honest. I went to the doctors to get referred to the hospital, to cut a long story short, I booked online to a different hospital as they could see me far quicker than my usual hospital we are talking weeks earlier here. Anyway when I go to this hospital to see about getting fumaderm again, they tell me they cannot prescribe that at this hospital. They then discharge me and I'm now waiting for another referral to the local Hospital.

Not sure why they gave me the option of the other hospital when they can't prescribe what I need.

Recently I have been on betnovate scalp application, this isn't working, it dries the psoriasis up but it doesn't clear it. I've. Been on dovonex, dovobet and are currently.on exorex.

[jiml]

Hi TB and to the forum. I feel your frustration and like you wonder at the NHS and the lack of uniformity
Enjoy the club I'm out at the moment but just wanted to say hi as a fellow fumaderm lover

Have a good look around the club we are all the same as you, just sufferers of the disease sharing information.
If you have any questions just shout and someone will answer

Jim

[Caroline]

Hi TB32,

at psoriasisclub.

You will find a nice group of people, with amazing knowledge gathered over here.

It was of course to be expected, that when stopping your meds, you would finally have an outbreak.
How long have you been using Fumaderm ?
Was there a reason to stop with it?
Why can't they prescribe it? I am from Holland and I sometimes don't understand how it works with you, over here any doctor can prescribe it if there has been initially a dermatologist involved.

Have fun on the forum, we are not only here because of our common problems.

Cheers,
Caroline

[TB32]

Hi TB and   to the forum. I feel your frustration and like you wonder at the NHS and the lack of uniformity
Enjoy the club I'm out at the moment but just wanted to say hi as a fellow fumaderm lover

Have a good look around the club we are all the same as you, just sufferers of the disease sharing information.
If you have any questions just shout and someone will answer  

Jim

Thanks Jim.
There's no rhyme nor reason to psoriasis I'm nearly two stone lighter than I was before Christmas due to health eating, exercize and drinking around 3 litres of water a day, and I was looking forward to being able to go on holiday and not have to worry about putting a t-shirt on when I get off the sunbed to hide my psoriasis.

I was even looking forward to showing off some never before seen abs I've been working on, however it looks like I may have to save this for another year now. What I'd give to be back on fumaderm right now. When I was on this previously I was 99% clear.

[JohnB]

Hi TB and welcome to the Club. I can well understand your frustration. The only thing national about our NHS is how you pay for it.
Unfortunately Fumaderm is not available everywhere, it looks like you unfortunately lost out on the Post Code  Lottery   in this instance .
Feel free to wander the site, there is a wealth of information available through the generosity of Fred and by all means get involved if you so wish. Don't be afraid to ask any questions, somone can generally point you in the right direction if nobody has had direct experience.
JohnB

[Fred]

Hello TB to Psoriasis Club.

John is right Fumaderm is not available in all parts of the UK. It's funded independently by each individual council and not a widely used treatment funded directly by the Government. So if your local NHS trust don't want or can't afford to prescribe it, you won't get it.

Regards.

Fred.

[Kat]

Welcome TB! I don't know much about your system there but I hope you're able to get back on Fumaderm again soon.

[D Foster]

Hi TB , yes the NHS is crap ,I have found that the only way to get anywhere is to shout very loud ,my daughter has had a really bad deal from the NHS and it has taken me a lot of agro to get her sorted out.
Hope that you get the appointment at your local hospital soon, if I was you I would keep pestering them with letters/phone calls ,I had to resort to legal threats.
If you can get a smelly ointment called Cocois scalp ointment which contains three active ingredients, coal tar, salicylic acid and precipitated sulfur.  Cocois ointment also contains coconut oil, which helps to moisturise and soften the skin. It works great and I used to put it on at night and cover it with a shower cap then next morning give it some welly with a comb plus a shower with something like Polytar on it. Coconut oil is very good on it's own as well.

Welcome to the site TB and just have a good look around and ask any questions that you like as all the inmates have P or PsA so they can answer from experience not theory like the so called health professionals , this site set up by Fred probably has more info on P/PsA than anywhere else I can think of.

[Fiftyplus]

Hello T

I didn't see where you came from, but from a recent visit to my docs its going to take 16 weeks to get a dermo appointment.  I did ask my doctor but apparently I cannot Fumaderm  off them.

What I should have started with though was HELLOOOO and welcome.

Hope you get what you need sooner rather than later.

Fifty

[TB32]

Hi TB32,

at psoriasisclub.

You will find a nice group of people, with amazing knowledge gathered over here.

It was of course to be expected, that when stopping your meds, you would finally have an outbreak.
How long have you been using Fumaderm ?
Was there a reason to stop with it?
Why can't they prescribe it? I am from Holland and I sometimes don't understand how it works with you, over here any doctor can prescribe it if there has been initially a dermatologist involved.

Have fun on the forum, we are not only here because of our common problems.

Cheers,
Caroline

Hi Caroline, I was on F for approx 3 years. As I was clear the hospital obviously wanted to discharge me  and I foolishly agreed to it.

When I arranged to get a referral from the GP you now get the option of attending different hospitals due to some having longer waiting lists than others. What they don't tell you though is those with a shorter waiting list don't necessarily have the same medication available to them. That's what happened in this instance, it's just frustrating as I would have obviously just hose to wait longer for my local hospital had I known.