Anyone tried Otezla

[Fred]

So I am going to say the advice that I was given on here which was to not give up, was the right advice. I am sorry I have not kept in touch but to be honest for many months I was all doom and gloom.

Hope you are all keeping well.

Sandra

Hello Sandra, you don't need to apologise we're just glad we could help. Now you are helping others in return.

Thank you for updating, I look forward to more good news as time goes by.

I'm well thank you for asking.

Regards.

Fred.

[Caroline]

Sorry forgot to say..
Also no swollen, stiff, sore joints!! All gone!
Sandra

Well Sandra, that is a great relief for you but also for us to hear that you are doing so good on Otezla.
Keep on going like this

Caroline.

[Sandra]

Hi again

Just to let you know that I saw my consultant today and she couldn't believe the difference in my skin herself!

She was very interested in my experience as she only has a handful of patients taking Ortezla.

I think I have been very lucky as I have very few side affects and even those as the weeks go by are becoming milder.
I have had no headaches, no depression, sore throat, respiratory infections etc...In fact my mood has improved 100%, my skin is around 70% clear and she believes this will continue.

As this is a newer drug, she will continue to monitor for some time. Bless her she said, she had felt so sorry for me and she didn't know how I had continued to work.

It is great to be able to say after 10yrs, that even if I get no further clearance, I am happy with my body and appearance.

It is also being looked at for PSA and so again she was very interested as I said previously, I am no longer stiff or sore.

So that's it for now folks, I'm off to have a very large glass of wine with friends and wearing a dress that is not a maxi!

Sandra

[jiml]

Hi again

Just to let you know that I saw my consultant today and she couldn't believe the difference in my skin herself!

She was very interested in my experience as she only has a handful of patients taking Ortezla.

I think I have been very lucky as I have very few side affects and even those as the weeks go by are becoming milder.
I have had no headaches, no depression, sore throat, respiratory infections etc...In fact my mood has improved 100%,  my skin is around 70% clear and she believes this will continue.

As this is a newer drug, she will continue to monitor for some time. Bless her she said, she had felt so sorry for me and she didn't know how I had continued to work.

It is great to be able to say after 10yrs, that even if I get no further clearance, I am happy with my body and appearance.

It is also being looked at for PSA and so again she was very interested as I said previously, I am no longer stiff or sore.

So that's it for now folks, I'm off to have a very large glass of wine with friends and wearing a dress that is not a maxi!

Sandra

This makes such good reading Sandra ....you sound so positive, and cheerful thanks for for updating
It makes a good read  

I will raise a glass and share a bottle of wine with you

[Sandra]

Thanks Jim
It was your encouragement that got me to hang in!

Sandra

[jiml]

Thanks Jim
It was your encouragement that got me to hang in!

Sandra

My pleasure I'm glad you hung in ..... You did have me a bit worried though

[Caroline]

Thanks Jim
It was your encouragement that got me to hang in!

Sandra

My pleasure I'm glad you hung in ..... You did have me a bit worried though  

Very well done Jim! So you see what a bit of support can do.
I think that as psoriasis is the equal disease as PsA, with the same cause, that every medication will work for both disease forms, I really do not understand why doctors make a difference that does not exist.
sometimes.. Doctors.....

[Sandra]

I'm not a fan of Otezla at all. I never tried it, so take this post as a grain of salt. Otezla works for psoriasis very slowly. It takes as much as six months to show full benefit compared to 3 months for most biologics. It's gastro side effects and it's depression warning is more than enough not to take it.

Hi,
I am on Ortezla, I have been very lucky, skin improvement of 70% after two months, month 3, 80%.
There are gastro side effects and the first couple of weeks are a bit grim but as the weeks go on it lessens. Although you don't need to take Ortezla with food, I find it actually reduces the nausea.
Again I haven't experienced depression on this drug in fact the opposite, my mood is great, now I no longer need to be wrapped in tar and bandages and I no longer need 2 carrier bags full of steroid creams, epiderm, etc..
I do know we are all individuals and what works for some won't work for others. I am someone ( who Jim will confirm) has an absolute phobia about side effects of medication, I agreed to try this simply because there are no known carcinogenic ones. I am so glad I did.
Sandra

[jiml]

Sandra wrote

I do know we are all individuals and what works for some won't work for others. I am someone ( who Jim will confirm) has an absolute phobia about side effects of medication, I agreed to try this simply because there are no known carcinogenic ones. I am so glad I did.

Confirmed Sandra    thank goodness you overcame them

[kmitchell68]

I am one week into my Otezla starter pack.  No symptoms to speak of so far.  Maybe a little dry mouth.  Haven’t killed myself either.  That seems like a real bad side effect.  

No real benefit seen thus far.  Thinking of buying a cordless vacuum cleaner in the mean time.  I am leaving huge piles of skin flakes everywhere I go.  Looks like a snowstorm.  Ready for something to work.  

My latest major flare has P bad on not only my legs, but now pretty bad at the waistline and underarms.  You know how much that sucks. 

I would be interested in knowing when others started seeing benefit.  Sandra’s comments were certainly encouraging.