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Psoriasis Club › HealthHealth Boards › Introductions v
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Hello from me

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Hello from me
Lou84 Offline
Newbie


Posts: 1
Threads: 1
Joined: Aug 2017
Gender: Female
Location: Coalville, Leicestershire
Treatment: Topical treatments
#1
Thu-31-08-2017, 10:40 AM
Hi all,

I'm new here, found the club by searching something about psoriasis on google.
I started getting scalp psoriasis in 2011, it got much worse after my dad died. Eventually I went to the GP and got given some betnovate. No real follow up planned, eventually went back and was prescribed sebco. Stinky horrible stuff but damn effective. Since then it's been much better and much worse! I've had stronger steroid applications. 

I started fertility treatment in 2015, and the stress and having my hormones messed with seemed to trigger guttate psoriasis, which was all over my body in little spots, and is now slightly better controlled with mainly flexures and legs being affected. Afternoon a long battle with the GP prior to starting IVF in 2016 I was finally referred to a dermo. I've had various topical treatment since but had to hold off having light therapy as my fertility consultant didn't want me to have it whilst having IVF. (Logistically impossible anyway) 

Well, fast forward to now, unfortunately fertility treatment didn't work, so I am due to start light therapy next week. My psoriasis has been quite good over the spring/summer months as I've been outside a lot, plenty of Vit D! Hoping light therapy helps going into winter cos that's when it hotbed bad again last time. 

I'm seeking natural/holistic ways of managing it. Reducing stress with complementary therapies, currently seeing a medicinal herbalist and planning to try some dietary measures e.g. limiting/eliminating dairy intake. 

Can't wait to make some buddies connecting on here. It can be very isolating.

All the best to everyone,

Lou x
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,208
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#2
Thu-31-08-2017, 10:49 AM
Hello Lou  Welcome to Psoriasis Club.

If you do want to try the natural approach you may find something of interest in his section Natural Treatments For Psoriasis

Have a good look around you will find a friendly bunch, so you never need to feel alone. If you want to get to know some of the other members the [Group Specific] board is a good starting place, so just dive on in.

Regards.

Fred.
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#3
Thu-31-08-2017, 11:08 AM
Hi Lou and a big  Welcome to the club I'm so glad you have found us, and I agree psoriasis can be isolating . As it seems to be something we all keep hidden as far as possible......but here you are among friendly fellow sufferers who understand the feelings that we all have had......

Sorry your fertility treatment failed, that's a big blow for you, will you get another try later?

Good you are on the uv treatment always a good time to start at the end of the summer when we get less natural sun ....hopefully it will see you through the winter months  Thumb

I'm glad google is still pointing sufferers towards us, as here you will find a wealth of information about the disease and the treatments to deal with it, along with members experiences

I see fred has pointed you towards the natural health board ....enjoy browsing and feel free to join in any of the threads and join some of us in the off topic section for a chat or a virtual drink  Big Grin

A great way to stay in touch is to subscribe to our free monthly newsletter Groups and just click on join group  Thumb

Jim
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,290
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#4
Thu-31-08-2017, 15:48 PM
Hi and welcome to the club Lou , this is the place to find information on psoriasis in fact there is more on the subject than anywhere that I have come across and Fred does not allow adverts or people trying to sell rubbish "cures" for lots of money that do not work so if you want to know anything just ask and you will be answered by inmates with the same problems not some health so called professional .
We are a happy crew and just join in and have a look around .
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#5
Thu-31-08-2017, 21:26 PM
Hello Lou,

Welcome to psoriasisclub.

There is always someone here you can connect to. Thumb

See you around.

Caroline
Grizzly Bear Offline
I’m a born again lesbian & proud of it !

100 + Member I Just Cant Stop !
Posts: 10,064
Threads: 108
Joined: Dec 2014
Gender: Male
Location: Exmoor
Psoriasis Score: E = mc²
Psoriatic Arthritis Score: A = mc²
PQOLS: 69
Treatment: Carbolic Acid & Neat Bleach
#6
Thu-31-08-2017, 23:35 PM
Welcome Lou Wave
Wooley Offline
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#7
Thu-31-08-2017, 23:52 PM
Hi Lou  Wave

Welcome to the club!!

I am quite a newbie on here too but the help, support and advice (and lol's) on here has been brilliant.....Such a nice bunch of people who are always there for anyone who may be struggling, looking for advice etc......none of us are doctors but the experiences of fellow sufferers and advice on here is so informative and helpful.

Welcome on board anyway, hope you get some resolution soon.....I am mid way through light treatment too.....fingers crossed it works for us both!!!

Catch you soon

Wooleyb x
Turnedlight Online
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,179
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#8
Fri-01-09-2017, 09:57 AM
Hi Lou! Wave nice to meet you!
Kat Offline
Take my advice; I don't use it anyway.

100 + Member I Just Cant Stop !
Posts: 9,829
Threads: 84
Joined: Aug 2014
Gender: Female
Location: GA
Psoriasis Score: 3
Treatment: Clobetasol Topical
#9
Tue-05-09-2017, 16:40 PM
Welcome Lou!

Lots of nice people here. Sorry the fertility treatment didn't work for you. I can understand if you are thinking of trying again later why you'd want to go with a holistic and diet approach. I don't have the will power or knowledge to go that route but admire those willing to try.
dyorke Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 182
Threads: 4
Joined: Apr 2016
Gender: Female
Location: UK
Treatment: Acitretin
#10
Tue-05-09-2017, 19:25 PM
Hi Lou

Welcome to the Club - you will find lots of support here and  always someone to listen.
I hope you find the info useful and please do what I did - ask lots of questions - I am much happier since I found this club !
Welcome

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