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Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
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Starting Skilarence.

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Starting Skilarence.
Turnedlight Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 6,181
Threads: 62
Joined: Apr 2015
Gender: Female
Location: Uk
Treatment: Skyrizi
#11
Thu-14-12-2017, 11:51 AM
Hi mr gnomusy! Nice to meet you Wave
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MrGnomusy Offline Author
Member


Posts: 17
Threads: 1
Joined: Aug 2016
Gender: Male
Location: Sweden
Treatment: Stelara
#12
Tue-02-01-2018, 12:58 PM
Hi guys, sorry for the late update. Yes Caroline it was my intestines was growling in the beginning. Not so much anymore tho. But I've moved up to the big boy tables yesterday. 120mg at 19:00 and woke up this morning at 03:30 with my head on fire,  Angry like OneBigItch described last year in his post. (I've read the whole thread) 


I pretty much sailed through the initial build up period tho, a little flushing and bubbley belly, nothing to serious tho. 
My psoriasis has starting flaring up a bit these past few weeks but I'm optimistic, and hesitantly looking forward to the nightly flushes as I'm certain it's just a telltale sign that the Skilarence is doing its thing.
Not sure I want to bump up the dose to 240 until the (burning my head and neck off) flushing starts to subside a bit. 

Thanks for the helpful tips and supportive comments everyone!
Happy new year to you all, and especially the Psoriasisclub members and the staff!  Thumb
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MrGnomusy Offline Author
Member


Posts: 17
Threads: 1
Joined: Aug 2016
Gender: Male
Location: Sweden
Treatment: Stelara
#13
Tue-02-01-2018, 13:01 PM
(Thu-14-12-2017, 11:51 AM)Turnedlight Wrote: Hi mr gnomusy! Nice to meet you  Wave

HI Turnedlight, nice to meet you too!  Bigarm
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Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,211
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#14
Tue-02-01-2018, 13:01 PM
(Tue-02-01-2018, 12:58 PM)MrGnomusy Wrote: Happy new year to you all, and especially the Psoriasisclub members and the staff!  Thumb

Thank you, and have a healthy new year yourself. Smile
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MrGnomusy Offline Author
Member


Posts: 17
Threads: 1
Joined: Aug 2016
Gender: Male
Location: Sweden
Treatment: Stelara
#15
Tue-02-01-2018, 13:07 PM
(Wed-13-12-2017, 17:28 PM)jiml Wrote: Are you taking your Skilarence with a meal and plenty of fluid ...you could try taking it early in the evening

With my Fumaderm I take it with my breakfast and lots of coffee ....the evening tablets I take with my meal and again lots of fluid .......the side effects should subside when your body gets used to the drug .....it should be easier the longer you are in it ....I barely notice the odd flush now......you stick with it ....if it work it can give long term relief, on Fumaderm I've been clear for 6 years now  Thumb

I've not worked out a schedule for when I take it yet. But yeah, if I haven't eaten it a while I will make sure to do so. Thanks! (From a fellow avid coffee drinker!)  Cool
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jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
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Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#16
Tue-02-01-2018, 13:26 PM
(Tue-02-01-2018, 13:07 PM)MrGnomusy Wrote:
(Wed-13-12-2017, 17:28 PM)jiml Wrote: Are you taking your Skilarence with a meal and plenty of fluid ...you could try taking it early in the evening

With my Fumaderm I take it with my breakfast and lots of coffee ....the evening tablets I take with my meal and again lots of fluid .......the side effects should subside when your body gets used to the drug .....it should be easier the longer you are in it ....I barely notice the odd flush now......you stick with it ....if it work it can give long term relief, on Fumaderm I've been clear for 6 years now  Thumb

I've not worked out a schedule for when I take it yet. But yeah, if I haven't eaten it a while I will make sure to do so. Thanks! (From a fellow avid coffee drinker!)  Cool

One thing I did notice when I started Fumaderm was that the flushes and cramps didn’t increase as I increased the dose.... they were consistently bad whatever the dose, but I can understand your reluctance to increase for fear of even worse side effect. But my personal experience didn’t show that  

Happy and healthy flake free new year to you and your family
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Caroline Offline
You must hurry if you ever want to catch a chicken...
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Treatment: Got back to DMF slow release
#17
Tue-02-01-2018, 16:00 PM
(Tue-02-01-2018, 12:58 PM)MrGnomusy Wrote: Hi guys, sorry for the late update. Yes Caroline it was my intestines was growling in the beginning. Not so much anymore tho. But I've moved up to the big boy tables yesterday. 120mg at 19:00 and woke up this morning at 03:30 with my head on fire,  Angry like OneBigItch described last year in his post. (I've read the whole thread) 


I pretty much sailed through the initial build up period tho, a little flushing and bubbley belly, nothing to serious tho. 
My psoriasis has starting flaring up a bit these past few weeks but I'm optimistic, and hesitantly looking forward to the nightly flushes as I'm certain it's just a telltale sign that the Skilarence is doing its thing.
Not sure I want to bump up the dose to 240 until the (burning my head and neck off) flushing starts to subside a bit. 

Thanks for the helpful tips and supportive comments everyone!
Happy new year to you all, and especially the Psoriasisclub members and the staff!  Thumb

hihi. Tongue
Yes, I recognize the flushes. Did you already get them over your whole body? For me it started at the top of my head and than slowly went downwards, even sometimes that I was red over my whole body.
But remember, the flushing is only a minor innocent side effect. The bubbley belly is an inconvenient side effect, also innocent. The lymphocyte count is the most important one. By the way, a lot of immune system inhibitors have the effect of lowering the lymphocyte count.
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MrGnomusy Offline Author
Member


Posts: 17
Threads: 1
Joined: Aug 2016
Gender: Male
Location: Sweden
Treatment: Stelara
#18
Tue-02-01-2018, 21:02 PM
(Tue-02-01-2018, 16:00 PM)Caroline Wrote: hihi.  Tongue
Yes, I recognize the flushes. Did you already get them over your whole body? For me it started at the top of my head and than slowly went downwards, even sometimes that I was red over my whole body.
But remember, the flushing is only a minor innocent side effect. The bubbley belly is an inconvenient side effect, also innocent. The lymphocyte count is the most important one. By the way, a lot of immune system inhibitors have the effect of lowering the lymphocyte count.

No, it hasn't effected any other part of my body just yet. Maby because I don't have as high a concentration of spots on my body as I do around my face and scalp. My gutate is well spread out, and not as big of a (prick) as it could be... I do feel a tingling sensation in my arms and legs for a while when the burning subsidies tho. 

By the way, are fumaderm also blue round tables? Is the blue coating just for good looks or doubles it as a gastric acid resistant compound? I do tend to think out loud a lot... lol  Whistle
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Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,597
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#19
Tue-02-01-2018, 21:19 PM
(Tue-02-01-2018, 21:02 PM)MrGnomusy Wrote:
(Tue-02-01-2018, 16:00 PM)Caroline Wrote: hihi.  Tongue
Yes, I recognize the flushes. Did you already get them over your whole body? For me it started at the top of my head and than slowly went downwards, even sometimes that I was red over my whole body.
But remember, the flushing is only a minor innocent side effect. The bubbley belly is an inconvenient side effect, also innocent. The lymphocyte count is the most important one. By the way, a lot of immune system inhibitors have the effect of lowering the lymphocyte count.

No, it hasn't effected any other part of my body just yet. Maby because I don't have as high a concentration of spots on my body as I do around my face and scalp. My gutate is well spread out, and not as big of a (prick) as it could be... I do feel a tingling sensation in my arms and legs for a while when the burning subsidies tho. 

By the way, are fumaderm also blue round tables? Is the blue coating just for good looks or doubles it as a gastric acid resistant compound? I do tend to think out loud a lot... lol  Whistle

I think it aims at some kind of placebo effect for something .. Angel
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glenda grant Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 2,891
Threads: 8
Joined: Aug 2014
Gender: Female
Location: New Salem, Pennsylvania
Treatment: biologics
#20
Tue-02-01-2018, 21:35 PM
Welcome to our group you will learn a lot from our members.I myself am on Enbrel 50 mg sureclick pen they each are prefilled.One month supply is 4 shots $6000 thank goodness my husband is a Vereran here in the USA and I am covered on his medical otherwise I would’t Be taking my shots.I have Psoriasis and Psoriatic Arthritis Plus osteoarthritis. All the frigid weather we are having in Pennsylvania has really been making my bones.You will fit right in with our group!
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