Psoriasis Club
  • Forum
  • Home
  • Portal
  • Member List
  • Psoriasis Score
  • PQOLS
  • What is psoriasis
  • Search
  • Help
Hello Guest, Welcome To The Psoriasis Club Forum. We are a self funded friendly group of people who understand.
Never be alone with psoriasis, come and join us. (Members see a lot more than you)
wave
Login Register
Login
Username:
Password:
Lost Password?
 
Psoriasis Club › HealthHealth Boards › Prescribed Treatments For Psoriasis v
« Previous 1 2 3 4 5 6 26 Next »

Reducing Acitretin Medication - Thoughts?

Pages (9): « Previous 1 … 4 5 6 7 8 9 Next »
Jump to page 
Threaded Mode
Reducing Acitretin Medication - Thoughts?
Wooley Offline Author
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#51
Wed-25-03-2020, 23:52 PM
Sorry I meant to update this last week but I have a lot going on at the moment, so wasn't able to........

Ok so I saw my Derm end of Feb (who is a specialist in Palmoplantar Pustular Psoriasis incidentally), and he has said that it looks like my psoriasis (albeit a rare one by comparison) has gone into remission!!!!!  Well I wasn't even sure that this could happen but seemingly it has.  I did self reduce my medication anyway, as you know, but I have now been taken off acitretin permanently.

Not sure how I feel about this but happy that I am not taking any medication but I have a theory that I was misdiagnosed in the first place but I will never know that's for sure.

I haven't had any signs or symptoms since early 2018, of which I am hugely grateful for, let me tell you that!  But as you know I asked for my medication to be reduced and now I am on nothing..... scary but fingers crossed that it continues.

Just thought I would update this post accordingly....

Wooley
Quote
jiml Offline
100 + Member I Just Cant Stop !

100 + Member I Just Cant Stop !
Posts: 47,972
Threads: 357
Joined: Oct 2013
Gender: Male
Location: Norwich England
Psoriasis Score: 3
Treatment: Skilarence 5x120mg a day
#52
Thu-26-03-2020, 03:21 AM
I hope that you were misdiagnosed wooley as whatever it was has gone now and hopefully won't return
As far as I'm concerned that's a brilliant outcome but can understand your nervousness for fear of it returning to you Bigarm
Quote
D Foster Offline
“You only live once, but if you do it right, once is enough.”

100 + Member I Just Cant Stop !
Posts: 25,287
Threads: 17
Joined: Dec 2014
Gender: Male
Location: East Yorkshire
Treatment: Stelara 90mg and G&T
#53
Thu-26-03-2020, 08:08 AM
Let's hope that you will remain clear now. Take care Wooley.
Quote
Caroline Offline
You must hurry if you ever want to catch a chicken...
*
Forum Helper
Posts: 26,593
Threads: 113
Joined: Nov 2011
Gender: Female
Location: In between the tulips
Psoriasis Score: 3
Psoriatic Arthritis Score: 3
PQOLS: 4
Treatment: Got back to DMF slow release
#54
Thu-26-03-2020, 08:42 AM
Well that is looking very good Wooley!
Would be great if it is in remission, I think that is possible.
If your derm is a specialist, I think the chance of a misdiagnostic is not so large, but.... still a chance.

Great that you are off medication.

I understand fully the light stress there always is about the coming back of the Psoriasis. It is the same for all of us, one is always alert of symptoms in that direction.

Good luck !
Quote
JohnB Offline
I wanted to be an Engineer when I grew up, but was told I could'nt do both

100 + Member I Just Cant Stop !
Posts: 4,725
Threads: 36
Joined: Jan 2016
Gender: Male
Location: Lancashire UK
Psoriasis Score: 10
Psoriatic Arthritis Score: Hmm Maybe
PQOLS: 5
Treatment: Otezla/Apremilast & Enstilar occasionally.
#55
Thu-26-03-2020, 08:44 AM
Well irrespective of what it was it is really  good news you are clear now and no longer on meds. That's a win.  Thumb
Quote
Wooley Offline Author
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#56
Thu-26-03-2020, 10:48 AM
(Thu-26-03-2020, 03:21 AM)jiml Wrote: I hope that you were misdiagnosed wooley as whatever it was has gone now and hopefully won't return
As far as I'm concerned that's a brilliant outcome but can understand your nervousness for fear of it returning to you  Bigarm

Thanks Jim, I am pleased but fingers crossed it doesn't make another appearance any time soon!!!  Thumb
Quote
Wooley Offline Author
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#57
Thu-26-03-2020, 10:48 AM
(Thu-26-03-2020, 08:08 AM)D Foster Wrote: Let's hope that you will remain clear now. Take care Wooley.

Thanks Dave, fingers crossed  Thumb
Quote
Wooley Offline Author
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#58
Thu-26-03-2020, 10:50 AM
(Thu-26-03-2020, 08:42 AM)Caroline Wrote: Well that is looking very good Wooley!
Would be great if it is in remission, I think that is possible.
If your derm is a specialist, I think the chance of a misdiagnostic is not so large, but.... still a chance.

Great that you are off medication.

I understand fully the light stress there always is about the coming back of the Psoriasis. It is the same for all of us, one is always alert of symptoms in that direction.

Good luck !

Thanks Caroline,  Yes I am very pleased but will always in the back of mind be on the lookout for signs but for now I can be happy with this current outcome....  Thumb
Quote
Wooley Offline Author
I'd be unstoppable if I could just get started!

100 + Member I Just Cant Stop !
Posts: 2,654
Threads: 7
Joined: Jul 2017
Gender: Female
Location: Spain
Treatment: Nothing currently
#59
Thu-26-03-2020, 10:51 AM
(Thu-26-03-2020, 08:44 AM)JohnB Wrote: Well irrespective of what it was it is really  good news you are clear now and no longer on meds. That's a win.  Thumb

Thanks John and absolutely its great news and long may it continue - defo a win!!  Thumb
Quote
Fred Offline
I Wanted To Change the World But Got Up Far Too Late.
Moderator
Posts: 67,201
Threads: 3,902
Joined: Aug 2011
Gender: Male
Location: France
Psoriatic Arthritis Score: 1
PQOLS: 1
Treatment: Bimzelx / Coconut Oil
#60
Thu-26-03-2020, 12:27 PM
That is great news Wooley Clap

Long may it stay that way and even if it was misdiagnosed, I'm sure this thread will bring hope to others.

Smile
Quote
« Next Oldest | Next Newest »
Pages (9): « Previous 1 … 4 5 6 7 8 9 Next »
Jump to page 


Possibly Related Threads…
Thread Author Replies Views Last Post
  Acitretin side effects JohnB 36 50,352 Tue-13-08-2019, 16:19 PM
Last Post: sunnyman
  At what point do you call Acitretin quits? PainInTheGuttate 12 16,429 Fri-14-12-2018, 20:03 PM
Last Post: JohnB
  Newly diagnosed and about to start Acitretin Kentpatient 116 124,688 Sun-09-09-2018, 13:03 PM
Last Post: Kentpatient
  Acitretin/Neotigason & PUVA experience tarny79 10 12,866 Wed-06-09-2017, 20:21 PM
Last Post: Kat
Sad Medication and strenuous activities? arfstrom 13 14,178 Fri-07-07-2017, 05:35 AM
Last Post: Caroline



Users browsing this thread: 2 Guest(s)
    About | Contact us | Login | Register | Home | Cookies/GDPR | RSS Syndication | Portal | Types Of Psoriasis | Psoriasis Score | Members Only Boards
    Copyright © 2010 - 2025 Psoriasis Club | All Rights Reserved | Founded May 2010 | Psoriasis Club Is Self Funded Without Sponsors Or Donations | Software by MyBB | Social
Linear Mode
Threaded Mode